The two statements also stood out to me, especially the first one. I thought the strong position of advocacy on behalf of Louis by his parents made a huge difference in the level of attention and treatment he received.Emma Grey wrote: ↑11 Aug 2023, 18:55 Patient advocacy was an important theme in this book and one that resonated with me as someone living with invisible chronic illnesses and disability. Some quotes that stood out to me are:
- Learning to stand up for oneself, learning to complain on one’s own behalf, even when justified in depth, is one of life’s most needed and most difficult skills. It requires emotional and verbal competence. Even confident people don't always do it well, especially if they have been living in a perpetual state of high anxiety and stress.
I’d love to hear other people’s thoughts about the patient advocacy themes in this book.
- Traditionally in the West, there were rigid barriers between doctor and patient or patient’s family. Timidity yielded to authority; anxiety bowed to formality; the white coat ruled. … we became a valuable part of the team delivering the very best care to a young patient fighting for his life.
Patient advocacy
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Re: Patient advocacy
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Rather than blindly following a doctor's advice, patients and their families should engage in thorough research and ask plenty of questions.
Patient advocacy empowers both patients and their families to make well-informed decisions about their conditions. Also, transparent communication between patients and healthcare providers contributes significantly to effective treatment.
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It is important to advocate for yourself and others when necessary. It is important to be involved in your plan of care. You should know the type of medicines you take and the dosage. Keep up with all appointments. Sometimes doctors will communicate with patients in medical terms. Do not be ashamed to ask them to explain it so you can understand it. Take down notes, if you need to, from the doctor so instructions and information is clear. Do not be afraid to ask for second or third opinions about your medical issue. Always ask questions. No question is a silly question.