Review of Symptomatic: Life of A Sickle Cell Carrier

Please use this sub-forum to discuss any non-fiction books such as autobiographies or political commentary books.
Post Reply
User avatar
Kshitija Sonawane
Book of the Month Participant
Posts: 586
Joined: 29 Oct 2023, 03:41
Currently Reading: symptomatic
Bookshelf Size: 38
Reviewer Page: onlinebookclub.org/reviews/by-kshitija-sonawane.html
Latest Review: Symptomatic: Life of A Sickle Cell Carrier by Louise Rachael Mwape Miller

Review of Symptomatic: Life of A Sickle Cell Carrier

Post by Kshitija Sonawane »

[Following is an official OnlineBookClub.org review of "Symptomatic: Life of A Sickle Cell Carrier" by Louise Rachael Mwape Miller.]
Book Cover
5 out of 5 stars
Share This Review


Have you ever heard of sickle cell anemia? I remember it was first taught to us in eighth grade. Sickle cell anemia means that the red blood cells are sickle-shaped instead of their regular biconcave shapes. They cannot go everywhere like normal red blood cells do. Because of this, oxygen cannot go everywhere. It is a recessive trait. So, those who are sickle cell dominant supposedly die in the womb. We were told that those who inherit the recessive sickle cell trait live a normal life. However, Symptomatic: Life of A Sickle Cell Carrier, a book that challenged my previous beliefs, made me realize that there's more to this condition than meets the eye. This book has significant implications for our understanding of sickle cell anemia, particularly in challenging the traditional view of the disease.

The book, written by Louise Rachael Mwape Miller, starts with an explanation of sickle cell anemia. It further talks about the author's personal journey, her struggles with the disease, and the dismissals she faced from medical professionals. This personal touch makes the book more relatable and engaging. The book also sheds light on the author's perspective on the medical professionals' dismissal, providing a balanced view of the healthcare system's treatment of sickle cell anemia patients.

This book was like a wake-up call. Yes, we were taught about how carriers of this disease might have problems with their babies. However, I somehow did not associate it with real people. Seeing the author having such pain with her miscarriage broke my heart. The second pregnancy, especially, was very bad. As a woman myself, I would be absolutely broken if I had to go through this. I liked the author’s resolution and willpower. Was she successful in giving birth to the baby? Or will the fate of the first pregnancy repeat for the second time? I was very curious to find out.

Whenever I thought I could not be more horrified, the author kept proving me wrong. The medical negligence by healthcare workers was enormous. It is hard to believe that this happened in this century and not five to six centuries ago. Also, my mind constantly kept going to one detail: the medical bills. The good thing is that the author is based in the UK, giving her a way to survive without having debts. However, the terrible service she received was also because she was based in the UK.

Miller is a fighter through and through. She fights the disease in her body, the people around her, and the doctors who treat her, and she still tries to live a normal life, working jobs and all. I admire this spirit, and she talks about how praying has helped her throughout her life so that she can fight. This book is about faith, willpower, and general ignorance about sickle cell carriers in the medical community.

Another thing I did not find in this book is profanity or any sexual scene. However, there were a lot of disturbing scenes involved. One such scene was how her hospital bathroom’s commode had filled up with blood and stools and how it was leaking out of the bathroom and entering the hospital room. I also found a racial slur in the book. Someone had called the author that term.

My critique lies in the first chapter. I feel like she could have gone into more detail, talking about genes, dominant genes, recessive genes, and so on. However, she did include pictures of the diagrams. Those were very helpful. I do realize that this is not a medicinal book. However, directly talking about genes without explaining these terms just seems wrong.

The author has been through a lot. She wrote this book so that healthcare workers would become more aware and won’t treat other patients of the trait the way they treated her. Editing of this book was good too. This is why I rate this book 5 out of 5 stars.

******
Symptomatic: Life of A Sickle Cell Carrier
View: on Bookshelves | on Amazon
There are few things in life that can make me as happy as oily foods.
User avatar
Stephen Christopher 1
Minimum Wage Millionaire Reader
Posts: 1809
Joined: 07 Feb 2023, 04:27
Favorite Book: The Book Thief
Currently Reading: The Girl Who Loved Caravaggio
Bookshelf Size: 248
Reviewer Page: onlinebookclub.org/reviews/by-stephen-christopher-1.html
Latest Review: Harold and Lewey by Bela Feketekuty
2025 Reading Goal: 12
2025 Goal Completion: 0%

Post by Stephen Christopher 1 »

Wow, you just taught me something! I'd heard of sickle-cell anemia but I didn't know what it was, and now I do. Health care around the world appears to be an issue. My 82yo mother has just had a situation at a hospital here in Thailand where they wanted her to have thousands of dollars of tests that she didn't need, purely to make money. The nurse was aggressively angry when we declined the tests. A book like this I hope, will wake up some of the medical professionals to focus more on patient care/requests than their own interests.
User avatar
Nneka Bridget
Book of the Month Participant
Posts: 212
Joined: 09 Oct 2024, 08:27
Currently Reading:
Bookshelf Size: 15

Post by Nneka Bridget »

Thank you for sharing this insightful review. It’s clear the book provides a valuable, real-world perspective on sickle cell anemia, which sounds both impactful and enlightening. I'll definitely consider adding this to my reading list.
User avatar
Steeve Bowen
Book of the Month Participant
Posts: 119
Joined: 29 Oct 2024, 09:37
Currently Reading:
Bookshelf Size: 28
Reviewer Page: onlinebookclub.org/reviews/by-steeve-bowen.html
Latest Review: Deceptive Calm by Patricia Skipper

Post by Steeve Bowen »

The little I can get from this review is a lot to take in. How can the medical services be that bad in this century! I love the fact that Miller is a fighter and I really hopes that she emerged as a winner over sickle cell anemia. This review is quite touching.
User avatar
Barar Zaki
In It Together VIP
Posts: 43
Joined: 18 Sep 2024, 07:58
Currently Reading:
Bookshelf Size: 12
Reviewer Page: onlinebookclub.org/reviews/by-barar-zaki.html
Latest Review: The Pursuit of Happiness by Paul Lucas Scott

Post by Barar Zaki »

Interesting. This disease when impacted, has been causing a lot bru ha ha in the world of humanity of times.
User avatar
ZCReviews
Book of the Month Participant
Posts: 414
Joined: 08 Nov 2023, 19:50
Favorite Book: Rules of Redemption (The Firebird Chronicles Book 1)
Currently Reading:
Bookshelf Size: 92
Reviewer Page: onlinebookclub.org/reviews/by-zanne-crystle.html
Latest Review: Indian curry - The way the restaurants make it by Carl Williams

Post by ZCReviews »

Kshitija Sonawane wrote: 28 Oct 2024, 14:26 [Following is an official OnlineBookClub.org review of "Symptomatic: Life of A Sickle Cell Carrier" by Louise Rachael Mwape Miller.]
Book Cover
5 out of 5 stars
Share This Review


Have you ever heard of sickle cell anemia? I remember it was first taught to us in eighth grade. Sickle cell anemia means that the red blood cells are sickle-shaped instead of their regular biconcave shapes. They cannot go everywhere like normal red blood cells do. Because of this, oxygen cannot go everywhere. It is a recessive trait. So, those who are sickle cell dominant supposedly die in the womb. We were told that those who inherit the recessive sickle cell trait live a normal life. However, Symptomatic: Life of A Sickle Cell Carrier, a book that challenged my previous beliefs, made me realize that there's more to this condition than meets the eye. This book has significant implications for our understanding of sickle cell anemia, particularly in challenging the traditional view of the disease.

The book, written by Louise Rachael Mwape Miller, starts with an explanation of sickle cell anemia. It further talks about the author's personal journey, her struggles with the disease, and the dismissals she faced from medical professionals. This personal touch makes the book more relatable and engaging. The book also sheds light on the author's perspective on the medical professionals' dismissal, providing a balanced view of the healthcare system's treatment of sickle cell anemia patients.

This book was like a wake-up call. Yes, we were taught about how carriers of this disease might have problems with their babies. However, I somehow did not associate it with real people. Seeing the author having such pain with her miscarriage broke my heart. The second pregnancy, especially, was very bad. As a woman myself, I would be absolutely broken if I had to go through this. I liked the author’s resolution and willpower. Was she successful in giving birth to the baby? Or will the fate of the first pregnancy repeat for the second time? I was very curious to find out.

Whenever I thought I could not be more horrified, the author kept proving me wrong. The medical negligence by healthcare workers was enormous. It is hard to believe that this happened in this century and not five to six centuries ago. Also, my mind constantly kept going to one detail: the medical bills. The good thing is that the author is based in the UK, giving her a way to survive without having debts. However, the terrible service she received was also because she was based in the UK.

Miller is a fighter through and through. She fights the disease in her body, the people around her, and the doctors who treat her, and she still tries to live a normal life, working jobs and all. I admire this spirit, and she talks about how praying has helped her throughout her life so that she can fight. This book is about faith, willpower, and general ignorance about sickle cell carriers in the medical community.

Another thing I did not find in this book is profanity or any sexual scene. However, there were a lot of disturbing scenes involved. One such scene was how her hospital bathroom’s commode had filled up with blood and stools and how it was leaking out of the bathroom and entering the hospital room. I also found a racial slur in the book. Someone had called the author that term.

My critique lies in the first chapter. I feel like she could have gone into more detail, talking about genes, dominant genes, recessive genes, and so on. However, she did include pictures of the diagrams. Those were very helpful. I do realize that this is not a medicinal book. However, directly talking about genes without explaining these terms just seems wrong.

The author has been through a lot. She wrote this book so that healthcare workers would become more aware and won’t treat other patients of the trait the way they treated her. Editing of this book was good too. This is why I rate this book 5 out of 5 stars.

******
Symptomatic: Life of A Sickle Cell Carrier
View: on Bookshelves | on Amazon
This review was very comprehensive; it gave me a good idea of what to expect from the book. I like your recap of what sickle cell anemia is. I don't usually read medical biography-type books because they tend to either infuriate me or make me really sad, and it sounds like this book would do both. I'm proud of the author for surviving what she went through and happy that she put her story out there in the hopes of making a change in how our other patients are treated.
User avatar
Shirley Ann Riddern Labzentis
Previous Member of the Month
Posts: 1417
Joined: 29 Nov 2022, 21:32
Currently Reading:
Bookshelf Size: 402
Reviewer Page: onlinebookclub.org/reviews/by-shirley-ann-riddern-labzentis.html
Latest Review: Laura by A. G. Graham
Reading Device: B07H9H1K1C
2025 Reading Goal: 30
2025 Goal Completion: 116%

Post by Shirley Ann Riddern Labzentis »

Fantastic review! I had always heard about the disease but never really looked into it as it didn't relate to me or my family. I will look into it now. Thank you for the great review!
"Life is like a box of chocolates. You never know which one you are going to get!"
Latest Review: Laura by A. G. Graham
User avatar
Gerry Steen
Book of the Month Participant
Posts: 2720
Joined: 08 May 2023, 20:08
Favorite Book: Life Shattered
Currently Reading:
Bookshelf Size: 466
Reviewer Page: onlinebookclub.org/reviews/by-gerry-steen.html
Latest Review: Red Spy in Harbin by Mark Oulton

Post by Gerry Steen »

Kshitija Sonawane wrote: 28 Oct 2024, 14:26 [Following is an official OnlineBookClub.org review of "Symptomatic: Life of A Sickle Cell Carrier" by Louise Rachael Mwape Miller.]
Book Cover
5 out of 5 stars
Share This Review


Have you ever heard of sickle cell anemia? I remember it was first taught to us in eighth grade. Sickle cell anemia means that the red blood cells are sickle-shaped instead of their regular biconcave shapes. They cannot go everywhere like normal red blood cells do. Because of this, oxygen cannot go everywhere. It is a recessive trait. So, those who are sickle cell dominant supposedly die in the womb. We were told that those who inherit the recessive sickle cell trait live a normal life. However, Symptomatic: Life of A Sickle Cell Carrier, a book that challenged my previous beliefs, made me realize that there's more to this condition than meets the eye. This book has significant implications for our understanding of sickle cell anemia, particularly in challenging the traditional view of the disease.

The book, written by Louise Rachael Mwape Miller, starts with an explanation of sickle cell anemia. It further talks about the author's personal journey, her struggles with the disease, and the dismissals she faced from medical professionals. This personal touch makes the book more relatable and engaging. The book also sheds light on the author's perspective on the medical professionals' dismissal, providing a balanced view of the healthcare system's treatment of sickle cell anemia patients.

This book was like a wake-up call. Yes, we were taught about how carriers of this disease might have problems with their babies. However, I somehow did not associate it with real people. Seeing the author having such pain with her miscarriage broke my heart. The second pregnancy, especially, was very bad. As a woman myself, I would be absolutely broken if I had to go through this. I liked the author’s resolution and willpower. Was she successful in giving birth to the baby? Or will the fate of the first pregnancy repeat for the second time? I was very curious to find out.

Whenever I thought I could not be more horrified, the author kept proving me wrong. The medical negligence by healthcare workers was enormous. It is hard to believe that this happened in this century and not five to six centuries ago. Also, my mind constantly kept going to one detail: the medical bills. The good thing is that the author is based in the UK, giving her a way to survive without having debts. However, the terrible service she received was also because she was based in the UK.

Miller is a fighter through and through. She fights the disease in her body, the people around her, and the doctors who treat her, and she still tries to live a normal life, working jobs and all. I admire this spirit, and she talks about how praying has helped her throughout her life so that she can fight. This book is about faith, willpower, and general ignorance about sickle cell carriers in the medical community.

Another thing I did not find in this book is profanity or any sexual scene. However, there were a lot of disturbing scenes involved. One such scene was how her hospital bathroom’s commode had filled up with blood and stools and how it was leaking out of the bathroom and entering the hospital room. I also found a racial slur in the book. Someone had called the author that term.

My critique lies in the first chapter. I feel like she could have gone into more detail, talking about genes, dominant genes, recessive genes, and so on. However, she did include pictures of the diagrams. Those were very helpful. I do realize that this is not a medicinal book. However, directly talking about genes without explaining these terms just seems wrong.

The author has been through a lot. She wrote this book so that healthcare workers would become more aware and won’t treat other patients of the trait the way they treated her. Editing of this book was good too. This is why I rate this book 5 out of 5 stars.

******
Symptomatic: Life of A Sickle Cell Carrier
View: on Bookshelves | on Amazon
I am surprised that the medical community in the UK could have been so ignorant and uncaring about a patient suffering from sickle-cell anemia. This story needs telling and people need to be educated about this condition. I congratulate the author, Louise Rachael Mwape Miller, for taking the initiative to write this story and for earning a 5-star rating from you. Great review!
User avatar
Qwerty Writes
Book of the Month Participant
Posts: 245
Joined: 12 Sep 2024, 11:13
Currently Reading:
Bookshelf Size: 38
Reviewer Page: onlinebookclub.org/reviews/by-qwerty-writes.html
Latest Review: Orinthia by Most Everyone

Post by Qwerty Writes »

It sounds like such a heartbreaking tale. But I can imagine similar situations in public hospitals here in my own country. Though not to the degree of blood all over the place but rather the negligence of patients. I'd love to go through the book myself sometime. :?:
Kshitija Sonawane wrote: 28 Oct 2024, 14:26 [Following is an official OnlineBookClub.org review of "Symptomatic: Life of A Sickle Cell Carrier" by Louise Rachael Mwape Miller.]
Book Cover
5 out of 5 stars
Share This Review


The book, written by Louise Rachael Mwape Miller, starts with an explanation of sickle cell anemia. It further talks about the author's personal journey, her struggles with the disease, and the dismissals she faced from medical professionals. This personal touch makes the book more relatable and engaging. The book also sheds light on the author's perspective on the medical professionals' dismissal, providing a balanced view of the healthcare system's treatment of sickle cell anemia patients.

******
Symptomatic: Life of A Sickle Cell Carrier
View: on Bookshelves | on Amazon
Blueberry Dragon
Posts: 457
Joined: 28 Oct 2023, 00:14
Currently Reading:
Bookshelf Size: 43
Reviewer Page: onlinebookclub.org/reviews/by-blueberry-dragon.html
Latest Review: The Virtuous Physician by Elliott B. Martin, Jr.

Post by Blueberry Dragon »

I agree with you that more education around sickle-cell anemia and better understanding would benefit its victims. Thanks for the informative review, @Kshitija Sonawane.
Post Reply

Return to “Non-Fiction Books”